Local view for "http://purl.org/linkedpolitics/eu/plenary/2014-03-11-Speech-2-715-000"
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"en.20140311.71.2-715-000"2
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"Madam President, of course we need to protect an individual’s data, but we will also all suffer if overly-restrictive data laws halt the progress of research, especially medical research. Over 50 patient organisations and medical research charities have written to MEPs about their concerns. They are warning us that the Committee’s changes to this new law will make many health research projects at worst illegal and at best unworkable, and particularly so for large-scale projects.
For example, the Million Women Study, which is looking at breast cancer and its relationship with HRT. It is this sort of project which they say would be unworkable with the specific consent regime and narrow exemption proposed by the Committee. And surely all of us, including Ms in[nbsp ]’t Veld, might recognise the need for further work on diseases like cancer, Alzheimer’s and diabetes. Many of the Committee’s changes in other parts of the legislation are moving in a helpful direction, but it is vital that the changes to Articles[nbsp ]81 and 83 are reconsidered and expert advice is taken."@en1
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