Local view for "http://purl.org/linkedpolitics/eu/plenary/2009-11-11-Speech-3-208"

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"Madam President, ladies and gentlemen, our debate on neurodegenerative diseases permits me to introduce the problem of sclerosis and amyotrophic lateral sclerosis (ALS) and to bring to Parliament’s knowledge the fact that 150 people throughout Italy have begun a hunger strike as a show of support for Salvatore Usala, an ALS sufferer who has stopped eating in order to protest against the Italian Government’s indifference to the problems experienced by patients and their family members who are living with this terrible disease. This campaign is also being supported by members of the Italian Parliament, such as Antonietta Farina, and by our colleague from the Group of the Alliance of Liberals and Democrats for Europe, Mr Rinaldi. Above all, however, this is a struggle that ALS patients and their families face every day, in a dignified and quiet way, as part of the tragedy of having a terrible disease. ALS affects young people but there is no cure for it; and yet, the Italian state is very attentive to everything bar patients and their families. Carrying out research is a challenge for Europe but it is up to the Member States to guarantee patients a dignified existence."@en1
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