Local view for "http://purl.org/linkedpolitics/eu/plenary/2009-11-11-Speech-3-179"
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"en.20091111.18.3-179"2
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"Mr President, ladies and gentlemen, the initiative that we are about to launch is very important for two reasons: the first is the subject of the research, which concerns the fight against neurodegenerative diseases, and the second is the joint programming methods for the research.
Clearly, we would have preferred Parliament to have been more directly involved in the pilot project – this has been said and it is the subject of our question. While we must press on now and not bring matters to a halt, we are nonetheless asking for guarantees that our opinion will be taken into account in the Competitiveness Council’s deliberations, and that a more certain legal basis will be defined in future so that Parliament can be fully involved and there can be a greater sense of ownership in this field of research.
We must now intervene with adequate means and resources to prevent and eradicate the widespread scourge of Alzheimer’s disease, Parkinson’s disease and the other diseases, which are destined to become more common as our population ages. We call for efforts to be focused on extensive, large-scale studies, aimed both at diagnosis and at identifying cures. Research into biomarkers, into early diagnosis methods based on a multidisciplinary approach, the compilation of vast databases, and the search for curative medicines and appropriate treatment and service models would appear crucial.
I wish to make just one request in this House: that we ignore neither the individual circumstances of patients, which are too often excluded in the context of these types of disease, nor the involvement of patients’ and relatives’ associations. From a methodological point of view, we believe that joint research projects are very important because they fulfil an essential requirement: that of pooling efforts and resources and overcoming these divisions, these duplications, and therefore being able to create a critical mass that is sufficient to produce satisfactory results from this type of research.
If we consider that, in other parts of the world, joint public and private efforts manage to invest tens of millions of euros, we realise how much there remains for us to do and how much we still have to do, by directing our efforts towards joint projects, towards strategic lines of action and joint programmes between the Member States and Europe and towards common programmes between public and private operators, without disregarding that international framework that puts us in contact with major scientific developments at international level."@en1
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