Local view for "http://purl.org/linkedpolitics/eu/plenary/2009-04-23-Speech-4-306"

Predicate	Value (sorted: default)
rdf:type	lpv_eu:Speech2
dcterms:Date	"2009-04-23"^^xsd:date2
dcterms:Is Part Of	lp_eu:Explanations of vote2
dcterms:Language	"pt"^^xsd:language2
lpv:document identification number	"en.20090423.58.4-306"2
lpv:hasSubsequent	lp_eu:2009-04-23-Speech-4-3072
lpv:speaker	lp:Edite Estrela2
lpv:spokenAs	vice-chair; FEMM (2007-02-01--2009-07-13)3 member; Delegation for relations with the countries of Central America (2007-03-14--2009-07-13)3 member; ENVI (2007-01-31--2009-07-13)3 member; PES (2004-07-20--2009-07-13)3 unknown; Partido Socialista (2004-07-20--2009-07-13)3 member; Delegation to the Euro-Latin American Parliamentary Assembly (2007-05-23--2009-07-13)3 substitute; Delegation for relations with the People's Republic of China (2007-03-14--2009-07-13)3
lpv:translated text	"I voted for the report on rare diseases, because I feel that concerted action in the field of rare diseases at the European Union level and at the national level is an absolute necessity. Although the incidence of each rare disease is very low, millions of Europeans are affected because there are many rare diseases. I feel it is vitally important to support independent organisations, provide access to information on rare diseases, create specialist centres in the various Member States, create training courses at existing centres, and mobilise experts and professionals. Adequate resources need to be provided to ensure immediate action in the field of rare diseases."@en1

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