Local view for "http://purl.org/linkedpolitics/eu/plenary/2009-04-23-Speech-4-100"
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"en.20090423.5.4-100"2
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"I find that coordinated actions at the level of the European Union and the Member States in the area of rare diseases are absolutely crucial. I support the rapporteur’s position that this recommendation by the Council and the plan of action in its present form are insufficient, and that it is not possible to create a functioning programme in the European Union on that basis. There are no specific recommendations and definite deadlines for implementation.
It will definitely not be possible to achieve a breakthrough in this area without efforts and funding from the European Union and Member States. I believe that rare diseases must undoubtedly receive special attention, and we must consider the specific needs of those several million citizens, to make it possible to guarantee them a dignified life in future. I do not concur with the claim by the previous speaker, Mr Claeys, that tuberculosis comes into Member States from third countries. I do not agree with that. Tuberculosis comes from poverty and homelessness, and in Member States with lower standards of living this disease is common today."@en1
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